Rare diseases are being discovered and characterized at an astounding rate. Little is known about some of these rare diseases. RareCAP is working to become a clearinghouse of treatment information.

Users can search the RareCAP database for a rare disease of interest, view and download protocols to address a specific patient need, and engage with the RareCAP community by commenting on protocols and responding to other user comments.

We encourage professionals with expertise in a rare disease to add their care management protocols to the platform. All new protocols are vetted by the RareCAP Curation Team before being published to the site. Email rarecap@vumc.org for more information.