Archives: FAQs

1. What if I can’t find the rare disease I’m looking for?

2. Does this platform connect me to advocacy or support groups?

3. What if I’m interested in participating in a research study or a clinical trial?

4. Can I contact the disease owner to ask for treatment options?

5. Can I try these care options on RareCAP without talking to my doctor?

6. Additional questions?

1. What if I can’t find the rare disease I’m looking for?

2. I want to submit a disease, how do I become a disease author?

3. I’m interested in collaborating on a disease, how do I do that?

4. What if I’m interested in participating in research or a clinical trial?